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Areas of interest

  • Screening, prevention and early diagnosis
  • Primary Care
  • Public Health
  • Prostate Cancer
  • Very happy to contribute to projects outside the areas above

Sue Duncombe

PPI Patient Co-Lead, Experience: Prostate Cancer

Sue’s Experience

My husband died of prostate cancer.

His treatments included prostatectomy, hormone treatment, chemotherapy, palliative radiotherapy. He took part in a phase 3 study using a vaccine to stimulate the body’s immune system to attack cancer cells. When there were no further licensed drugs available, he was recruited into a phase 3 study of a new drug, abiraterone, which had a very positive impact on his Quality of Life and extended his life.

Experience with Cancer Research

My involvement began with Cancer Research UK as a cancer campaigns ambassador. This involves influencing MPs and raising awareness with the public of campaigns to get the government to introduce legislation to improve cancer outcomes. Campaigns have focused primarily on prevention (smoking, obesity) and improving early diagnosis (increasing the number of diagnostic staff to meet increased demands).

Over the last 5 years I have got involved in PPI activities with various organisations:

  • National Cancer Research Institute (NCRI) Consumer Forum Member and consumer representative on the Prostate Group
  • CRUK – member of Catalyst Award Expert Review Group (group decided which £5m research proposal was funded each year)
  • NIHR Research Champion and Partnership Board member of Thames Valley South Midlands network
  • Input into numerous research proposals with Nuffield Dept Primary Care Health Sciences
  • Member of Oxford cancer research patient and public advisory group
  • CRUK Involvement network – numerous one off working groups and on-line feedback

During my career I was involved in developing UK strategy for a global organization and managing operational implementation. Skills and experience included:

  • Analysing data and information from a variety of sources
  • Reviewing plans and providing feedback
  • Communicating – written and verbal including technical info to lay audiences
  • Group working